Learn to be a patient advocate for the healthcare you, your child, or other loved one are entitled to.
Momvocate's goal is to help parents of kids with rare, complex, or other conditions get the best care through targeted healthcare advocacy. I share tips, tricks, & camaraderie on my personal blog and social media. I'm the momvocate for a child with a rare genetic condition, as well as other children who rely on the Arizona Division of Developmental Disabilities. But I welcome patient advocates of all stripes to participate!
We are joining forces with a pair of devoted momvocates to make the paid parent caregiver program permanent. Learn more by visiting our Take Action page. Sign the petition, share your story via the "contact us" button at the bottom of the screen, and/or write your state representatives. All the information yoiu need to become a part of this movement is available on the Take Action page.
Make sure to stay up to date on all things related to disabilities in Arizona (and sometimes nationally) by checking out my Blog and Events page. The Events page is a compilation of events from many disability organizations from Arizona and around the country. The Blog discusses developing news, or takes a deeper dive into some of the issues we are hearing about in the disability community.
I am a mother and a lawyer. Being an attorney has helped me be a better mom, because it has enabled me to ensure that my daughter gets the best possible healthcare as quickly as possible. If you are interested in learning strategies to obtain better, faster care for you or your little one, this is the place to be!
Sometimes the best way to improve results for you or your child is to change the system from the inside. There are a number of ways to get involved: volunteer organizations, patient advocacy boards with local hospitals, and even state and local government organizations that are charged with providing services for medically complex children. If you want to get involved, I can help you find the right board or organization to give time to, as well as review information to help you achieve your goals to be appointed to an advocacy board.
Sign up to hear about updates and opportunities to get involved and improve care for our rare disease and medically complex kiddos!
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